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1 Cure for the Price of 16,365.

October 15, 2009

In Lwala malaria is graded on a curve.  A mild case is “a touch of malaria.”  It goes up from there; “a dash,” “a bit,” “a case,” “a serious case,” “dead.”  People in Lwala are accustomed to getting malaria several times a year, even if they sleep under a bed net, which many don’t.  My friend Omondi, director of the hospital in Lwala, came down with malaria and came to me for treatment (this was before the clinic was running).  I asked him how long it had been since he last had malaria.  “Oh, a long time,” he said.  “Nine months.”  He’s the only person in the village who take prophylaxis against malaria, doxycycline.  He also sleeps under a bed net.  “You got malaria in nine months even taking doxycyline?” I asked.  “Yeah, it really works,” he replied.

Malaria is so common in Lwala that any headache is assumed to be malaria.  The correlation is so strong that the two maladies share a single word.  Malaria is a fatal disease, untreated, and it is a given fact of life for people in Lwala, as in much of sub-Saharan Africa and Latin America.

Lots of people came to my hut in Lwala sick with malaria.  I got really sharp at diagnosis.  A typical history: “I have malaria.”  “Oh, I’m sorry.  Do you have malaria the disease, or does your head just hurt?”  “It’s malaria the disease.”   Diagnosis: malaria. Malaria has a pretty wide variety of symptoms, and each person tends to experience it a bit differently.  The good news it, if a person has had malaria several times a year for her whole life, she’s usually got a pretty good sense of when she has it.  (Disclosure: Don’t try this at home. Good malaria diagnosis, particularly if you’re trying to run a cost-effective health system, is more complicated than this). After exercising my diagnostic muscles, I would give her a few Tylenol to knock down the fever and headache a bit and thirty Kenyan Shillings, roughly forty-five cents, to go pick up the malaria medicine from a local “pharmacist,” an untrained guy with a mud kiosk who sells drugs out the shutter.  A malaria cure costs forty-five cents on the open market in Lwala, and people still die from it left and right.  Often it’s not worth such big money until they’re really quite sick, and by then they need more than forty-five cents worth of medicine.

One day I treated a woman with a very straightforward case of malaria, with the help of my friend Yuca as interpreter.  After I sent the person away, she said “Tylenol?  That’s a bad medicine.  It doesn’t work.”  I was perplexed.  “Tylenol never cures malaria.” she told me.  “It just makes you feel better for a little while, and then the malaria comes back stronger than ever.”  It turns out the local manufacturers of Tylenol are wise to the common naming of headache and malaria, and they advertise their drug as the strongest cure for headache.  This is technically true, but it confuses a whole raft of people who just have one word for these two maladies.  Tylenol costs less than what the real malaria medicine costs, so people who aren’t in on the joke buy it to cure their malaria.  It’s cheap, but surprise – it doesn’t work.  So someone for whom it’s a major sacrifice just spent her money on a pain killer when she could have spent it on a drug to cure the malaria.  And the malaria may kill her.

The lost productivity from malaria is staggeringly high (as much as 1.3% decrease in GDP in African countries), and the cost of a single cure is staggeringly low.  But prevention is much cheaper than treatment – if everyone uses bed nets and they do a little insecticide spraying it’s possible to eradicate malaria in an area surprisingly quickly.  We use to have malaria in the southern United States.  Certain mining companies in Africa, the kind that employ thousands, have found it cheaper to eradicate malaria in their entire region than to deal with the lost productivity from employees sick with malaria.  And they only pay these guys pennies!  In places without such campaigns, malaria treatment accounts for up to 40% of public health expenditures. Treating malaria is cheap on an individual basis, and it’s easy, but it adds up fast when there are over 250 million cases a year worldwide. Eradicating malaria is a relative bargain, if you can see a few years out. But in the absence of either a moral vision to provide a cheap cure to everyone, or a pragmatic vision to eradicate the disease, over a million people die of malaria worldwide every year, most of them African children.

One fall after coming back from Lwala I started to get relapsing fevers.  One day I’d get a terrible headache and fever and crawl into bed.  The next day I’d wake up feeling fine, which would last a day or two before the headache and fever came on again.  Figuring I had some kind of flu, I took each brief interlude as a cure.  One night, just as one of the fevers was starting to come on, in vigorous denial, I went to a dance performance.  One of these was a performance of one of the first modern dance numbers, a very spare piece performed to a poem about the tyranny of the clock in the life of the factory worker.  A tall woman was reciting a poem in a sharp ringing voice, very slow and measured: “TICK… TOCK… TIME.”  Next to her a guy was dancing out the slow tick of a giant clock, very mechanical, mostly slow with occasional paroxysms of speed.  I was afraid I was going to die.  Apparently part of the point of the piece was to make the audience feel the slow drag of time for the factory worker.  It was very effective.  By the end I was afraid that maybe I wasn’t going to die after all.  I ducked out of the performance and crashed into bed with a temperature of 104.  By the next afternoon I felt fine again, and stupidly assumed I was better.

I landed in a hospital in New Hampshire a couple of days later, with hallucinations and a fever that no amount of Tylenol or IV fluids would bring down.  My malaria was the toast of the medical school community, and every student in the place came to talk to me.  Apparently they don’t treat a lot of malaria in New Hampshire.  They gave me doxycycline and quinine, and kept me overnight for observation, which I figured was mostly for educational purposes.

The total bill for my cure: $7,364.15.  That same money could have cured 16,365 cases of malaria in Lwala, which is easily two or three years worth of cures for the entire village.  Or better yet it could have gone a long ways toward eradicating malaria in the whole area.

Before the trip to Lwala when I got that $7,364.15 mosquito bite, I met a young doctor from Romania. I’d just come back from a different trip that took me across much of east Africa, and shared some of my experiences over a couple of beers.  “Your life is schizogenically dichotomous,” he suggested.

He was right, but not just about my life.  Our whole human society is schizogenically dichotomous.  The gap between the way the rich minority live and the way the poor majority live is utterly shocking.  For most of the world’s people, the other extreme is the farthest thing from their mind most of the time, certainly for those of us who are rich.  (If you’re reading this blog, this almost certainly includes you).  I’ve had the privilege of experiencing both of these realities, of living the connection between these poles.  I’m at no risk of dying from malaria, but a lot my friends in Lwala live with that constant possibility, along with the likelihood of losing their children to malaria.  The coffee I’m drinking as I write this cost four malaria cures in Lwala, and I spend thousands of malaria cures every year for health insurance so I can get a $7,000 cure in case I get another unlucky mosquito bite.

Living the extremes of this global dichotomy is implicating in a very uncomfortable way. Suddenly the tiniest details of my social, economic and political life seem like moral decisions. Even things I think of as systemic, beyond my control, start to feel like moral issues. It’s all rather complicated, isn’t it? Maybe I should be buying my coffee from a mining company. Maybe you should too.

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Burning, awaiting your turn

October 6, 2009

Would you give this guy some medicine? His urine is aflame, his business is a burning ring of fire! You wouldn’t be taking your sweet time if it was your business – you’d be dashing your way into the nearest dispensary. You don’t mess around with something like this! I know, I know, maybe he was messing around – maybe he got himself into this, but who cares? Fact is, the young man is in pain. And young men, you can’t expect them to avoid this kind of thing. It’s a coming of age thing. Even the pain – I suppose sexual diseases are the new circumcision – a modern day ritual of pain. But even back then, when we inflicted the cut, the tattoos, the scars, we used to liquor them up. It shouldn’t go on too long, or it will make a person bitter, like the roots of the elephant plant. Funny – that’s the same stuff Dani would give you to treat a diseased business. Shuffling out there into that little garden behind her house, unsteady, bending down to pick those roots, then cooking them up into a tea blacker than the blackest shit, and about the same taste. Bitterness, repulsion – this is the liminal space between sickness and health. Read the rest of this entry »

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Big Pharma Comes to Dinner: On the Separation of Corporation and State

October 1, 2009
A cartoon by Doug Minkler

A cartoon by Doug Minkler

I’m a corporation. Why am I talking like a normal person? Because I’m a person in the eyes of the law. I can do all the things you can do – I have all the legal freedoms you do. I can eat and breathe, consume and egest. I can pursue my self-interest, just like you. Except I’m bigger. And crazier.

All of us people, we have goals. What’s mine? Well, making money of course. A person has responsibilities – and mine are to you, actually. Your 401k has made me what I am, which is single-minded. What I care about is profit. You want to retire before you’re 70, don’t you? I don’t care about other things – even if they would make a long-term difference in my ability to make profit – because your mutual fund manager wants me to post a profit this quarter. So that’s what I’ll do, the environment be damned, human rights, social responsibility, human health – they can all go to hell, ‘cause that’s going to take more than this quarter, and if it’s past that I can’t concern myself with it.

But I shouldn’t pretend I don’t think about the future. Actually, since I’m a pharmaceutical company, I would prefer a future in which you were sick. If you are sick, I can sell you more drugs, which is sort of funny if you think about it. I’m a health company but my mission is advanced by you being more sick! Read the rest of this entry »

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What Raila was thinking last night at the Kennedy School

September 25, 2009

This week is enough to make an African leader feel like a world leader. I have just come from the UN summit. I have seen the biggest of middle-eastern men announce his nuclear trickery. I have seen my own tribesman, now the most powerful man on earth, respond with a roar. They will act, you can bet on it. They will make us all play by their rules. They have invited us to New York, all of us, but they have kicked us out in time for the serious business, the economic business.

But hey, let me tour around a little bit while they’re in meetings, and eventually they can open the doors a bit wider. The G8 is already up to twenty. Double that, and Kenya will be on the list! Already there are a few colonized in there with the colonists. And need I remind you that America was colonized too? Read the rest of this entry »

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Waking up cranky to a joyful song

September 23, 2009

I awoke to the usual cacophony. Yuca on her way to the garden, singing something about the gift of life, the impossible dream of being complete in your place and time. She, more than anyone I know, is living into her life – whole, satisfied. It is a life of challenge and hardship, of toil, but she wakes me up with her singing every morning – she is headed to the garden, she is headed to wash her body, as though the dirty old plastic bucket she carries was full of the finest sparkling water, not floating with grit and algae and smelling of shit. This is the cleanest she has ever known herself, this is the most awake she has ever been, this is the joy of a new day, too good to be contained. It does not cross her mind that others would like to keep sleeping. How could they possibly miss the beauty that is the hour before the sun rises? Read the rest of this entry »

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Alberto Chapter 5: Jackhammers, a Jewish burial, and the end

September 16, 2009

Alberto picked up the pieces in the coming weeks.  He continued to amaze me with his ability to focus on the positive.  Kenia recovered slowly, and Alberto Joel was pudgy and happy.  Alberto came up with a scheme to buy used goods in bulk in Ensenada and sell them at the neighborhood markets in Tijuana, working with some guy who had a pickup truck, and was trying to get a market permit.  He continued to help me at the orphanage, including a bunch of fun work with jackhammers.  I found a way to send some food his way.  He was recovering well himself, the hollows filling out slowly, and he seemed to have more energy than before. Read the rest of this entry »

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Alberto Chapter 4: Alive, Dead, Crazy

September 12, 2009

The baby was born just a couple of days before Alberto Sr. passed. We were all hoping for this – and Alberto Sr. got to see his first grandchild as the fulfillment of a dying wish. They named him Alberto Joel.

Kenia went crazy just about the same time Alberto Sr. died. They said it was postpartum depression. I wonder if it wasn’t just accumulated shock, but the doctor felt she was a danger to the child. He prescribed her a narcotic, and she was released from the prison of bed to the prison of sedation.

The events surrounding Alberto Sr.’s death threatened to drive the rest of us crazy as well.  Tijuana’s a big city with big city regulations, and you can’t just bury a dead person in your backyard. Read the rest of this entry »

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Abuyah – a beginning

September 2, 2009

It is frozen in time, that moment – as though the earth momentarily stopped spinning – just a sudden hitch, hardly long enough for the others to notice – a hiccup almost inconsequential – but for me… for me – enough to fling me from my feet into the clear air of Lwala, rising above my own rich man’s tin roof, rusty now, up to take in the huts built around it in that age-old order, in turn built around my father’s house, gone now back to the earth, ultimately nothing more than thatch and mud and sticks – but somehow as a human ordering of the organic, of our culture and family, indelible. Everywhere families arranged this way, are built around that which is no longer, old men long gone perpetuated in the social order of mud and thatch.

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Alberto Chapter 3: Draining Alberto Sr.

August 31, 2009

Alberto’s father fell ill by small increments.  The first sign was a little yellow tinge, a mild stink, but no one paid it any mind.  He was an alcoholic after all, and not well liked.  If he smelled a bit worse, or looked a bit less pink, who would have noticed?  Maybe they were sympathy pains, but he started losing weight along with his son.  Where did all that weight go?  And he started getting a bit bloated, his arms too skinny, his eyes too bulgy, and his skin the pale yellow of broccoli left in the sun.

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Alberto Chapter 2: Cowboy Boxer

August 28, 2009

Alberto showed up on Monday.  Alberto actually made a habit out of showing up, which distinguished him from nearly every other guy in our neighborhood, Pedregal.  At first we’d stand by the gate and chat, with the kids running around every which way, and he’d tell me about what he needed.  First on the list was a hospital bed for his dad.  Since the hospital wouldn’t take care of him, he wanted to make home as comfortable as he could.  As time wore on so did our chats, and my legs would grow tired, and I’d sometimes beg off; Dinner was ready, the kids needed tending.  But my excuses grew fewer, and eventually I dreaded the distraction that drew me away from our conversations.  Alberto started helping me with my work at the orphanage, and we’d talk and work together on one project or another.

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